Thomas is feeling things with his dad are well under control. When his teacher asked him this week how his dad was doing, he responded, "He's fine, Sam's praying for him."
Thursday, January 22, 2009
Monday, January 19, 2009
Update from the Infusion Room
Rob is currently receiving his 6th round of chemo today (as I type)...hopefully the very last!! We met with Dr. Braden today and he said that he felt Rob will have received the maximum results from 6 rounds and it is NOT likely that he will need to receive anymore chemotherapy. The risks of going beyond 6 rounds are too great...permanent neuropathy (tingling and numbness in his hands and feet) and possible heart damage. So, this is his last scheduled round of chemo and we pray that it will truly be the last!. After today, Rob will need to recover from this treatment and then the first week of February, he will have a series of PET and CT scans completed as well as an echogram of his heart. They want to make sure his heart is healthy and not damaged from the chemo he has already received and they also want to check the size of the tumor (hopefully it has melted away!!). The scans will also confirm that the cancer has not spread (which is unlikely).
We will meet with the doctor on Feb 6th and learn of the results and the next steps. If the tumor is gone, Rob will be finished with treatment and can focus on recovery and getting his strength back. He will have many visits to the Dr and many routine scans over the next several years to make sure that there is no cancer activity.
If there is any amount of the tumor left or scar tissue, we will need to meet with the radiation doctors and discuss radiation options. There is risk involved with the radiation since the tumor is so close to the heart, however we are told that it may be possible to use tomograph radiation and be able to shield his heart.
So, at this point...we need to stay positive, pray for great results and wait for the next steps along our journey.
Thank you so much for all of your love, support and prayers. We are so thankful and so blessed to have such an amazing group of family and friends supporting us and praying for us. We truly appreciate it more than we can express.
Love and Blessings to all of you.
Susie
We will meet with the doctor on Feb 6th and learn of the results and the next steps. If the tumor is gone, Rob will be finished with treatment and can focus on recovery and getting his strength back. He will have many visits to the Dr and many routine scans over the next several years to make sure that there is no cancer activity.
If there is any amount of the tumor left or scar tissue, we will need to meet with the radiation doctors and discuss radiation options. There is risk involved with the radiation since the tumor is so close to the heart, however we are told that it may be possible to use tomograph radiation and be able to shield his heart.
So, at this point...we need to stay positive, pray for great results and wait for the next steps along our journey.
Thank you so much for all of your love, support and prayers. We are so thankful and so blessed to have such an amazing group of family and friends supporting us and praying for us. We truly appreciate it more than we can express.
Love and Blessings to all of you.
Susie
Tuesday, January 6, 2009
Susie's Update
It has been a long week and a half for all of us, but I know it is especially hard for Rob. Although we each experience this cancer in our own way, for Rob it is something so big that we can only try to imagine and understand what it must feel like.
Each round of chemo is harder for him and round 5 is living up to its expectations and then some. Although Rob rarely complains or really talks about exactly how he feels, I know he is struggling with the side effects and feeling completely exhausted both emotionally and physically. Those of you that know Rob well, know he is a man of few words, but his actions speak for him. His movements through the house are much slower, he is sleeping more and tends to remain in bed most of each day with just short bursts of energy to play with the kids or moments around the table for a meal with us. I am sure this is partly because with a wife and two young boys in the house you are not able to rest much outside of the bedroom. The kids try to understand, but it is hard for them too. They see daddy and just want to run and play. I see Rob and just want to talk about everyday things (not cancer) or ask for his help with the kids or around the house. I continue to do what I can to make his recovery the best that it can be, but some days I feel like I just have nothing left to give or I just don't know what else to do. I guess maybe today is one of those days for me. As I type this, Sam is watching Spongebob and Thomas is throwing a fit in his bedroom. Rob is somehow resting through Thomas' tantrum and I am blogging, and cooking dinner ...2 options because I don't know which will sound good to Rob.
So, with each passing day I know things will improve for Rob. His strength will return and he will slowly begin to feel better. AND, as Rob says "just in time to do it all over again." We continue to pray for strength to get through this, grace to bear the cross that we carry and blessings upon Rob for his complete healing.
The next round of chemo will take place on January 19th. We pray that this will be the last round for him and that the cancer is gone. He will have additional PET and CT scans the first week of February and we will learn, at that time, the next steps for Rob.
Blessings and love to all of you. Thank you for your continued prayers for our family.
Susie
"They that hope in the Lord will renew their strength, they will soar as with eagles' wings, they will run and not grow weary, walk and not grow faint." Isaiah 40:31
Each round of chemo is harder for him and round 5 is living up to its expectations and then some. Although Rob rarely complains or really talks about exactly how he feels, I know he is struggling with the side effects and feeling completely exhausted both emotionally and physically. Those of you that know Rob well, know he is a man of few words, but his actions speak for him. His movements through the house are much slower, he is sleeping more and tends to remain in bed most of each day with just short bursts of energy to play with the kids or moments around the table for a meal with us. I am sure this is partly because with a wife and two young boys in the house you are not able to rest much outside of the bedroom. The kids try to understand, but it is hard for them too. They see daddy and just want to run and play. I see Rob and just want to talk about everyday things (not cancer) or ask for his help with the kids or around the house. I continue to do what I can to make his recovery the best that it can be, but some days I feel like I just have nothing left to give or I just don't know what else to do. I guess maybe today is one of those days for me. As I type this, Sam is watching Spongebob and Thomas is throwing a fit in his bedroom. Rob is somehow resting through Thomas' tantrum and I am blogging, and cooking dinner ...2 options because I don't know which will sound good to Rob.
So, with each passing day I know things will improve for Rob. His strength will return and he will slowly begin to feel better. AND, as Rob says "just in time to do it all over again." We continue to pray for strength to get through this, grace to bear the cross that we carry and blessings upon Rob for his complete healing.
The next round of chemo will take place on January 19th. We pray that this will be the last round for him and that the cancer is gone. He will have additional PET and CT scans the first week of February and we will learn, at that time, the next steps for Rob.
Blessings and love to all of you. Thank you for your continued prayers for our family.
Susie
"They that hope in the Lord will renew their strength, they will soar as with eagles' wings, they will run and not grow weary, walk and not grow faint." Isaiah 40:31
Thursday, January 1, 2009
Wishing a you a divine 2009!
Uncle Rob...we are sending you our love and prayers in this New Year!
Michael, Mary and Molly
"To the child of God, there is no such thing as an accident. He travels an appointed way. Accidents may indeed appear to befall him and misfortune stalk his way, but these evils will be so in appearance only and will seem evils only because we cannot read the secret script of God's hidden providence and so cannot discover the ends at which He aims. The man of true faith may live in the absolute assurance that his steps are ordered by the Lord. For him, misfortune is outside the bounds of possibility. He cannot be torn from this earth one hour ahead of the time which God has appointed, and he cannot be detained on earth one moment after God is done with him here." - AW Tozer
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